Send Kylie a Get Well Card
18-year-old Kylie Allen-Kulyk continues to battle stiff person syndrome, a condition that affects 1 in a million people.
Erie News Now has recently learned her condition has been acting up.
Her family is asking members of the community to help fill her room with get well wishes.
Kylie's parents say her body has been rejecting her chemo treatments and right now she is on a ventilator to give her body a break.
There is a way for you to help Kylie right from your computer.
On UPMC Hamots website they have e-cards to send patients and Kylie's family is hoping to fill her room with them for when she wakes up.
Kylie's condition, stiff person syndrome causes excruciating muscle spasms that can be strong enough to tear ligaments and break bones.
She has been in the hospital for over 75 days since the beginning of the year.
The e-cards are a way for Kylie to push through the hard times and know she has people supporting her.
Her parents say they get through these difficult times through laughter and prayer.
Help Kylie know that she has your support by sending her an e-card to UPMC Hamot.