Hunter's Hope: NFL Hall of Famer Jim Kelly's Lifesaving Impact on Local Family
NFL Hall of Famer Jim Kelly is pushing for genetic testing to be mandated in all newborns after the passing of his son. Thanks to his efforts, two local boys have a chance at life.
Kelly's son Hunter was diagnosed with Krabbe Disease, a degenerative disorder affecting the nervous system. He passed away at 8 years old.
"Toughest little boy I've ever met in my life," said Kelly. "Of course, I dreamed like every daddy does to be able to teach him football, basketball, all those great things. But I saw what her went through, and I don't want to see any other kids go through what my son went through."
In Hunter's honor, the Hunter's Hope Foundation was created. The foundation has raised over $6 million for neurological disease research. It's what helped mandate genetic testing in the state of New York. The tests that helped save the lives of Jack and Alex Young.
"It showed that he, Jim Kelly, cared about people who are in the hospital and having to deal with this kind of stuff," said 12-year-old Alex Young.
Jack and Alex are brothers. They were both born with MCAD, a disease that can be fatal if not caught early enough.
"I've been a bills fan for years," said their grandmother, LECOM employee Bobbi Kraft. "To actually get to meet him and thank him or saving the lives of my two grandchildren is amazing."
On Monday, LECOM Health hosted their 2nd annual Culture of Caring event at the Bayfront Convention Center. The event featured multiple guest speakers. This year's featured speaker was Buffalo Bills Hall of Fame Quarterback, Jim Kelly.
"If the good lord decides tomorrow is my day, I'm going out with a smile on my face," said Kelly. "I know where I'm going. I'm going to be with my son again"
For more information on Hunter's Hope, click here.